What is Patient-Oriented Research?

Patient-oriented research refers to a continuum of research that engages patients as partners, focusses on patient-identified priorities and improves patient outcomes. This research, conducted by multidisciplinary teams in partnership with relevant stakeholders, aims to apply the knowledge generated to improve health care systems and practices. (Source: https://cihr-irsc.gc.ca/e/48413.html)PE-(1).PNG


What is Patient Engagement?

Patient engagement is the meaningful engagement of patients in health research – it is research done with or by the public, rather than for, to, or about them.

The term patient is inclusive and refers to:
  • In-patients
  • Out-patients
  • Caregivers
  • Families
Patients bring expertise to the research team in the form of their lived experience with a specific condition and with the health care system. Patients can be engaged at different stages in the research cycle, as well as at different levels.


 




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When and how you engage patients depends on your research project, however we have a few general tips:
 

Engage patients as early in the research process as possible

  • It’s never too late to involve patients, but it is more effective and meaningful to engage patients in earlier stages of the research process.

Think about who you want to involve as a patient

  • Where would their expertise be most valuable in your project (i.e. identifying research priorities, providing feedback on public facing material, etc.).
  • Discuss these thoughts with your patients – how are they interested in being involved?
  • Set clear expectations around involvement so everyone on the team knows what is expected of them.

Communicate with your patient partners

  • Keep your patient partners updated on the progress of the research, even if it is to say that you’re waiting on external factors. They may not be familiar with how research typically progresses.


How Can NL SUPPORT Help?

NL SUPPORT is here to help you with your Patient-Oriented Research! We can:
  • Advise on the development of a Patient-Oriented Research proposal
  • Advise on the development of a patient engagement strategy
  • Assist in indentifying patient partner(s)
  • Provide support for patient engagement activities
  • Link to patient engagement tools and resources
  • Assist with Patient-Oriented Research related training

Additional Resources