Patient Engagement

Patient engagement is the meaningful engagement of patients in health research – it is research done with or by the public, rather than for, to, or about them.

The term patient is inclusive and refers to:

  • Patients with experience of a health issue
  • Caregivers
  • Families
  • Communities

A circular diagram that shows how stages of research are not always linear. Stages include: identifying and prioritizing, design, development of the grant proposal, preparation for execution of the study, data collection, analysing and interpreting data, implementation, and monitoring and evaluation.

Patients bring expertise to the research team in the form of their lived experience with a specific condition and with the health care system. Patients can be engaged at different stages in the research cycle, as well as at different levels.

Learn more about NL SUPPORT’s Patient and Public Advisory Council